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Our fourth book "Rare Journey" (Chinese version) is now available at all major bookshops!
香港黏多醣症暨罕有遺傳病互助小組
繁簡Eng. 

 

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Sharings

Patients Sharing

- By Ma Lik Sang (Eric):

Having Mucopolysaccharidoses give me a lot of inconveniences physically, and sometimes I’m upset with a lot of hurdles in life, but I have also been given very different experiences from others.  I need to see doctors very often, I have chances to take press interviews, all these made me treasure my life.  My biggest wish is to have medicine to improve my physical condition, and I also wish to study in a university, to nurture me to become a useful person.  I wish to travel a lot and see more of the world.  I wish to become a philosopher, a man with wisdom.  My idols are Socrates, Plato and Albert Einstein.  I wish to see my younger sister getting married and having children.

 

 

 

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