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Publications
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Name: |
Rare Parents
(罕有父母 in Chinese) |
| Type: |
Prose |
| Info: |
The English book tells touching, personal stories of 12 parents in Hong Kong, whose children were born with rare genetic diseases --- these are stories of shouldering pain, suffering, despair for the little ones, accepting and overcoming difficulties with courage, and immense love for their children and themselves. |
| Publishing Date: |
May 2010 (1st edition) |
| Publisher: |
BBluesky |
| Language: |
English version |
| Pages: |
128 |
| Price: |
HKD $68 |
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Name: |
Little Giants ● Great Letters
(醣豆豆 ● 情書書 in Chinese) |
| Type: |
Story Book |
| Info: |
Little giants --- 12 people with the genetic disease, Mucupolysaccharides (MPS); the big buddies --- 7 local designers. The 12 little giants and the 7 big buddies come together through letters and interviews for an interactive creative art project, “Little Giants X the Big Ds”, where the designers created exhibits based on the little giants’ ideas and dreams. Their ideas and artworks were presented at a May 2008 public exhibition. This book is a collection of their creative works, the ideas behind it, and selected letters between the little giants and their big buddies. Enclosed are 2 letters from the little giants to you as well. |
| Publishing Date: |
July 2008 (1st edition) |
| Publisher： |
BBluesky |
| Language： |
Chinese version |
| Page: |
56 |
| Price: |
HKD $65 |
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Name: |
MPS Factsheet |
| Type: |
Factsheet |
| Info: |
A small 6-fold stand-up leaflet introducing the disease Mucopolysaccharidoses, the treatment for them, and our organization. |
| Publishing Date： |
2009 |
| Publisher： |
BBluesky |
| Language： |
Chinese and English versions |
| Pages: |
12 |
| Price: |
Free |
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Name: |
Little Giants, Dreams of Braving MPS
(醣豆豆 大夢想 in Chinese) |
| Type: |
Story Book |
| Info: |
“Just like everyone else, Beanies work hard everyday. Eating, sunbathing, and exercising, and dreaming of growing up. But they don’t grow much taller…” Their bodies were small, but they had big dreams, that is, to keep moving forward. The stories in this book unveil the dreams and challenges faced by eight families in real life. |
| Publishing Date: |
September 2006 (1st edition) |
| Publisher: |
BBluesky |
| Language: |
Chinese or English version |
| Pages: |
80 |
| Price: |
HKD $58 |
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