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Media Clippings

2010
2010-01-03 Ming Pao News, News Section, page A1, Cambridge Ph. D. teaches an incurable HKCEE candidate (Article in Chinese only) -- Read
2010-02-07 Ming Pao News, News Section, "Exceptional parents are no longer lonely (Article in Chinese only) -- Read
2010-02-07 Ming Pao News, News Section, "Daughter, you made me mature" (Article in Chinese only) -- Read
2010-02-07 Ming Pao News, News Section, "Son, please forgive me" (Article in Chinese only) -- Read
2010-02-07 Ming Pao News, News Section, "You are always in my heart" (Article in Chinese only) -- Read
2010-02-09 Oriental Daily, Local News, Page A26, "Eric boy persisted on taking HKCEE after receiving cornea transplant" (Article in Chinese only) -- Read
2010-02-09 The Sun, Local News, Page A14, "'One-eyed' teenager persisted on sitting for HKCEE" (Article in Chinese only) -- Read
2010-02-24 OrphaNews Europe, Editorial, "Raising awareness for rare diseases – around the world in eighty ways!" -- Read
2010-02-25 Hong Kong Economic Times, Page A22, "Medical funding was incrased and cancer patients can be treated comprehensively" (Article in Chinese only) -- Read
2010-02-25 Ming Pao News, Page A06, 2010-11 Financial Budget -- Health, “Hope renewed for Form 5 MPS student” (Article in Chinese only) -- Read
2010-02-25 Ming Pao News, Page A06, 2010-11 Financial Budget – Health, “Cancer and rare genetic disease drugs included into Formulary to benefit 38000 patients” (Article in Chinese only) -- Read
2010-02-25 South China Morning Post, Page G03, Going Out, Arts: Event “The Song of Rare Disease Families”
2010-02-25 SingTao News, Page A07, Top News, “1.5 billion healthcare funding to benefit 86000 patients” (Article in Chinese only) -- Read
2010-02-25 Apple Daily, Page A08, Top News, “1.24 billion funding to push 6 healthcare measures” (Article in Chinese only) -- Read
2010-02-25 am730, Page M10, News, “Hospital Authority to receive 1.24 billion to beef up services” (Article in Chinese only) -- Read
2010-02-25 Wenweipo, Page A09, 2010-11 Financial Budget Funding, “1.24 billion for 13 thousand specialist outpatient quota” (Article in Chinese only) -- Read
2010-02-25 Hong Kong Commercial Daily, Page A03, Top News, “Land approved to build 4 private hospitals” (Article in Chinese only) -- Read
2010-02-25 Hong Kong Commercial Daily, Page A04, Top News – Healthcare funding, “More nursing training for primary care services” (Article in Chinese only) -- Read
2010-02-25 SingPao, Page A07, Top News, “Beef up primary health care services” (Article in Chinese only) -- Read
2010-02-25 Oriental Daily, Page A06, Local News, “8 expensive drugs to be added into Drug Formulary” (Article in Chinese only) -- Read
2010-02-25 Hong Kong Daily News, A03, News - Medical Expenditures, “Promote transfer of the chronically ill to the private market” (Article in Chinese only) -- Read
2010-02-25 The Sun, Page A04, Local News, “Hospital Authority receives 1.2 billion” (Article in Chinese only) -- Read
2010-02-25 Metro, Page P06, 2010-11 Financial Budget, “Healthcare funds to beef up services for malignant diseases” (Article in Chinese only) -- Read
2010-02-25 Headline News, Page P14, Local News, “1.24 billion healthcare funding in budget, cancer drugs into HA ‘Drug Formulary’ ” (Article in Chinese only) -- Read
2010-02-27 Wenweipo, Page A15, Hong Kong News, “Medical insurance may receive tax refund” (Article in Chinese only) -- Read
2010-02-27 SingPao, Page A03, Local News, “Consultation for medical insurance to begin in the next half of the year” (Article in Chinese only) -- Read
2010-02-28 South China Morning Post, Page 18-19, The Review, "The Planner" -- Read
2010-02-28 Macao Daily, "Annie Lau prays for good weather for tomorrow's run" (Article in Chinese only) -- Read
2010-02-28 SingPao, Page A07, Local News, “Rare disease families play music to raise funds” (Article in Chinese only) -- Read
2010-02-28 Wenweipo, Page A12, Hong Kong News – Never Give Up, “MPS family shows great maternal love” (Article in Chinese only) -- Read
2010-02-28 TaKungPao, Page C03, Entertainment, “Annie Lau to challenge the marathon” (Article in Chinese only) -- Read
2010-02-28 Oriental Daily, Page C09, Entertainment, “Annie Lau prays for next day’s run” (Article in Chinese only) -- Read
2010-02-28 The Sun, Page C10, Entertainment, “Annie Lau rests well for the marathon” (Article in Chinese only) -- Read
2010-02-28 Get Jetso Net, “Annie Lau prays for next day’s run” (Article in Chinese only) -- Read
2010-02-28 Apple Daily, Page A08, Local News, “Chan Yik-Hei develops walk-on piano keyboard” (video enclosed) (Article in Chinese only) -- Read
2010-03-10 SingTao News, Page A16, Daily Magazine, "Rare Parents" (Article in Chinese only) -- Read
2010-03-10 Hong Kong Independent Media, Fernandy Cheung's blog, "Rare Parents" (Article in Chinese only) -- Read
2010-03-20 Daily, "M PeaS" (Article in Chinese only) -- Read
2010-03-21 Apple Daily, Page E08, “Fund to help poor families for arranging their loved's burial” (Article in Chinese only) -- Read
2010-03-24 Happy Men, Magazine Feature story, “Let them live” (Article in Chinese only) -- Read
2010-05-17 TaKungPao, "Rare Parents" (Article in Chinese only) -- Read
2010-05-18 SingPao, "Panel of Experts who monitor the patients of the rare genetic diseases" (Article in Chinese only) -- Read
2009
2009-01-07 Apple Daily, Community section, Page E7, “Free drug use for Mucopolysaccharodisis children by pharma for 1 year Hospital Authority bombarded for lack of approval” ── Mavish Sultana and Hamza Shahid (Article in Chinese only) -- Read
2009-01-07 Apple Daily, Community section, Page E7, “Pakistani sister and brother still need $300,000 for medication” ──  Mavish Sultana and Hamza Shahid   (Article in Chinese only) -- Read
2009-02-10 Ming Pao News, Family section, page P1, “Father and son living life to the fullest with MPS” ──  Eric Ma (Article in Chinese only) -- Read
2009-02-10 Ming Pao News, Family section, pages P2-4,”Smile to Rare Genetic Disease” ── Eric Ma  (Article in Chinese only) -- Read
2009-02-10 Ming Pao News, Family section, “MPS comes in 7 types”  (Article in Chinese only) -- Read
2009-02-10 Ming Pao News, Family section, “Medication costs 4 million a year.  Drug is available but not money”   (Article in Chinese only) -- Read
2009-03-08 Oriental Daily, Local News, Page A2, “Hospital Authority ignoring death call to MPS brother and sister”  ──  Yeung Tak Chun (Johnny) and Yeung Hiu Dan (Annie)  (Article in Chinese only) -- Read
2009-03-08 The Sun, Local News, Page A12, “Delayed treatment killing MPS brother and sister.  HA taking away patient’s life to live”── Yeung Tak Chun (Johnny) and Yeung Hiu Dan (Annie)  (Article in Chinese only) -- Read
2009-03-08 The Sun, Local News, Page A12, “Hard to Live Beyond 20 with Rare Genetic Diseases” ── Yeung Tak Chun (Johnny) and Yeung Hiu Dan (Annie)  (Article in Chinese only) -- Read
2009-03-08 China News Agency, Photonews, “The Buddies Scheme kicked-off”
2009-03-08 China News Service website, Photo News, “Singer Jason Chan attended kick-off ceremony of MPS Buddies Scheme”  (Caption in Chinese only) -- Read
2009-03-08 China News Service Photo Web, Feature Photos, “Hong Kong singers support MPS Buddies Scheme kick-off ceremony”  (Caption in Chinese only) -- Read
2009-03-09 The Sun, Local News, A11, “HA delays new therapy.  MPS patients pay for own blood tests” ── Yeung Tak Chun (Johnny) and Yeung Hiu Dan (Annie)   (Article in Chinese only) -- Read
2009-03-17 The Standard, Young Post, Page Y4, "Be a friend to those in need"
2009-03-19 The Standard, Young Post, Page Y4, "Corrections and clarifications"
2009-03-19 China News Service Photo website, Photo News, “Mothers share thoughts and feelings on caring for their sick child on Mothers Day”  (Caption in Chinese only) -- Read
2009-05-11 RTHK, Life on Sunday, “HKMPS to host international conference in May”  (Audio in Cantonese only) -- Listen
2009-05-15 Oriental Daily, Page A24, “MPS patients can receive free treatment”  (Article in Chinese only) -- Read
2009-05-15 The Sun, Local News, Page A20, “Two MPS patients expected to have life-saving drug”  (Article in Chinese only) -- Read
2009-05-15 SingPao, Health section, Page A12, “MPS patients hope for more medical support”  (Article in Chinese only) -- Read
2009-05-15 Commercial Radio 881, On A Clear Day, “International MPS Day: This genetic disease has been forgotten” --- Interview with Stephen Ma  (Audio in Cantonese only) -- Listen
2009-06-06 Ming Pao News, "Partents' Hearts - MPS teenagers live happily." ── Yeung Tak Chun (Johnny) and Yeung Hiu Dan (Annie) (Article in Chinese only) -- Read
2009-06-07 RTHK – Parents' Hearts – A Child's Last Words ── Yeung Hiu Dan and Yeung Tak Chun (Video in Cantonese only) -- Watch
2009-06-10 Ming Pao News, "Rare genetic disease patients battle the disease alone. ── Ng Kam Shing (Article in Chinese only) -- Read
2009-06-10 Ming Pao News, "Eric is very ill now because he suffers from an illness longer " ── Eric Ma (Article in Chinese only) -- Read
2009-06-10 Ming Pao News, "Know more about Glutaric Aciduria - severe brain injury" (Article in Chinese only) -- Read
2009-06-10 Ming Pao News, "Doctor said that it is difficult to detect the recessive inheritance disease during pregnant. (Article in Chinese only) -- Read
2009-06-10 Ming Pao News, "Hong Kong Mucopolysaccharidoses & Rare Diseases Mutual Aid Group" (Article in Chinese only) -- Read
2009-07-21 Ponto Final, Page 7, “A rare disease with incidence in the Portuguese population” -- Read (English) / Read (Original article in Portuguese)
2009-07-21 Hoje Macau, Society page, “The disease more commonly affects Portuguese.  Macau does not have any cases of mucopolysaccharidosis type VI” -- Read (English) / Read (Original article in Portuguese)
2009-08-01 Ming Pao Weekly Magazine, "MPS Patient waits for treatment for many years. Luckily, he can receive treatment now." (Article in Chinese only)
2009-08-13 Apple Daily, “No time schedule for MPS Patients to receive treatment” ──  Mavish Sultana and Hamza Shahid   (Article in Chinese only) -- Read
2009-10-07 Apple Daily, "MPS Patients can receive treatment” ──  Mavish Sultana and Hamza Shahid   (Article in Chinese only) -- Read
2009-11-01 Ming Pao News,  Hospital rejected the Patient's mother to take care of (Article in Chinese only) -- Read
2009-11-01 Sing Tao News, Genetic disease patient unable to care care of himself. Hospital rejected Patient's mother to look after the son.
2009-11-25 Ming Pao News, 3 foot height of Form 5 MPS Paient asks for voluntary teacher (Article in Chinese only) -- Read
2009-11-25 Ming Pao News, MPS Paients cannot live over the age of 20 (Article in Chinese only) -- Read
2009-11-27 Metro Daily, MPS Paients - Mavish Sultana and Hamza Shahid (Article in Chinese only) -- Read
2009-11-27 Sing Tao News, Charity Card (Article in Chinese only) -- Read
2009-11-27 am730, Mannings sells "Love Card and Calendar" for MPS Patients (Article in Chinese only) -- Read
2009-11-27 Metro Daily, Celebrities' children participate in charitable activity (Article in Chinese only) -- Read
2009-11-28 i-Cable Channel 12 and ATV Local Channel, Tales of Our City, Episode #9 "B4 20" -- Mavish & Hamza -- Read (Website in Chinese only)
2009-12-01 The Sun, Features, "Mrs Lat's Diary" (Article in Chinese only) -- Read
2009-12-01 SingTao Daily, "Be an environmentally friendly kid" (Article in Chinese only) -- Read
2009-12-02 SingTao Daily, "Form 5 MPS Paient asks for voluntary teacher" (Article in Chinese only) -- Read
2009-12-21 Apple Daily, Eric Ma is waiting for your help  (Article in Chinese only) -- Read
2008
2008-01 Hong Kong Christian Service Newsletter, Number 293, “The Very Parents --- Walking With You” ── Eric Ma (Available in Chinese only) -- Read
2008-02-26 Apple Daily, Pie At Apple Forum, “Bring Them Hope”
2008-03-06 aTV News ── Patient group urges relaxing of medication sponsorship mechanism (Available in Chinese only) -- Read
2008-03-11 Sing Tao News
2008-03-14 The Metro ── Dr Poon
2008-04-13 Commercial Radio, “Kind People along the Way”
2008-05-05 The Sun, & Oriental Daily ── Eric Ma
2008-05-12 Weekend Weekly
2008-05-12 Hong Kong Economic Journal - Claudia Mo
2008-05-20 Apple Daily
2008-07-04 Apple Daily ── Hamza Shahid, Chung Wing Kei
2008-07 Equal Opportunities Commission Newsletter, July 2008 issue -- Read
2008-08-11 RTHK Channel 5, Life Sunday ── Tang Wai-man, Tang Wai-chi -- Watch
2008-08-17 Ming Pao Weekly ── Twinkie Chow
2008-09-21 Ming Pao Magazine ── Tang Wai-man, Tang Wai-chi
2008-10-06 Epoch Times ── Eric Ma
2008-10-13 Apple Daily ── Chung Wing Kei, Lo Wing Han
2008-10-19 Sunday Profile ”Living In This Moment” ── Eric Ma、John Liu -- Watch
2008-12-01 Pre-School Magazine ── Eric Ma
2008-12-01 Grateful Heart Magazine ── Eric Ma
2007
2007-01-04 Sing Pao, The Metro
2007-01 Pre-School Magazine ── Eric Ma
2007-01 Lisa Food Magazine ── John Li
2007-03-14 .15 aTV ”Facts” ── Tang Wai-man, Tang Wai-chi, Alan Chim, Eric Ma -- Watch
2007-03-30 Apple Daily, Dream Come True ── Wong Chun Ho
2007-03 Physician-Pharmacist-People Magazine ── Dr Chan Kam Hung
2007-05-21 The Sun, & Oriental Daily ── Yeung Tak Chun (Johnny) and family for Father’s Day
2007-05-28 Apply Daily ── Lo Ching Han
2007-07-05 Apply Daily ── Chung Wing Kei
2007-07-06 Apply Daily ── Sultana (Mavish and Hamza’s mom), Nurse Lai
2007-07-16 Tai Kung Po, Hong Kong Economic Journal, & Apply Daily ── Procession to the Hong Kong Chief Executive's residence
2007-07-19 Apple Daily Forum ── Mr Chan
2007-07-25 Commercial Radio program “Them, You and Me” ── Mr Cheng, Mr Stephen Ma
2007-07 RTHK Channel 2 program, Knowledge Co. ── Dr Xuan
2007-07-28 Apply Daily ── Chung Wing Kei, Lo Ching Han, about medication
2007-07-31 Apple Daily ── Procession to the Hong Kong Chief Executive's residence
2007-08 RTHK TV program, Parents’ Mottoes ── Chung Wing Kei -- Watch
2007-08 iCable TV program, Broadband ── Lo Ching Han, Eric Ma -- Watch
2007-08-06 Apple Daily ── Tsz-kei
2007-08-08 The Sun, apm HKCEE Sharing ── Alan Chim
2007-09-05 Hong Kong Economic Journal, junior English Street ── Eric Ma
2007-09-19 TVB, Pleasure and Leisure ── Dr Xuan, Eric Ma
2007-10-01 Working Report of Legislative Council Member Dr Fernando Chiu-Hung Cheung
2007-10-05 RTHK Channel 2, Wisdom Citizen ── Eric Ma, Nurse Lai
2007-10-10 Apple Daily
2007-10-16 Apple Daily ── Lo Ching Han
2007-10-22 Hong Kong Professional Teachers’ Union Newsletter, Issue 530, “Cheerless children under the sunny blue sky” ── Procession to the Hong Kong Chief Executive's residence (Article in Chinese only) -- Read
2007-10-23 Commercial Radio, Share My Song ── Eric Ma
2007-10-25 Hong Kong Commercial Daily
2007-10-27 Apple Daily ── Pakistani sister and brother Mavish Sultana and Hamza Shahid
2007-11 HKMAO newsletter
2006
2006-05-07 RTHK, Hong Kong Connection ── Eric Ma
2006-06-17 South China Morning Post ── Eric Ma
2006-09-28 Sing Tao News ── Eric Ma
2006-09-28 Sing Tao News ── Photo-taking for story book “Little Giants: Dreams of Braving MPS”
2006-10-01 Apple Daily & Wen Wei Po ── Exchange with Taiwan patient representatives
2006-10-10 Ming Pao News ── Leung Ka Bo
2006-10 Commercial Radio program ── Eric Ma
2006-10-25 East Week Magazine ── Pakistani sister and brother Mavish Sultana and Hamza Shahid
2006-10-30 iCable, We Are All Parents, “Walk Along With Me” ── Karen Chau, Dr Xuan -- Watch
2006-11-07 Hong Kong Economic Journal ── Book Review “Little Giants: Dreams of Braving MPS”
2006-12-26 Ming Pao News & Apple Daily ── “Dream Come True” (Karen Chau)
1999-2005
2005-05-08 RTHK, Hong Kong Connection ── Eric Ma -- Watch
2005-05-03 Wen Wei Po, Local News, Page A25, “High Spirit Despite Suffering from Sickness” ── Wong Wing Kan, Karen Chau, Yuen Hei Suet
2005-05-03 Apple Daily, Local News, Page A12
2005-05-03 Oriental Daily, Local News, Page A28, “Costly Therapy for MPS Type I”
2005-05-03 Sing Tao News, Local News, Page A15, “Therapy Costs Over A Million A Year for MPS Patients”
2005-05-03 Ming Pao News, Local News, Page A11, “Atrophy Body Earns A Wonderful Life”
2005-05-03 Ming Pao News, Local News, Page A11, “No Hospital Specialty for Rare Genetic Diseases. NGO Points to Missed Opportunities”
2005-05-03 Hong Kong Daily News, Local News, Page A9, “No One is Hiring the Short, Sick Patients”
2005-05-03 Wen Wei Po, Local News, Page A25, “40 Hong Kong Patients Fighting For Rights” (Available in Chinese only) -- Read
2005-05-03 The Sun, Local News, Page A24, “Hoping For Financial Support to Treat MPS” (Article in Chinese only) -- Read
2005-05-03 Tai Kung Post, Local News, Page A14, “40 Hong Kongers Suffering From Rare Genetic Diseases. Large Head, Short Height and Life, Needs 7 Digits For Medications Each Year”, & “23-Year-Old In Mommy’s Brace”
2005-05-03 Hong Kong Economic Times, Local News SpeedPost, Page A34, “Hong Kong MPS Mutual Aid Group Formed”
2004-11-08 RTHK, Hong Kong Connection, Episode 1111, “No Regret in Life” ── Eric Ma
2004-11-08 Wen Wei Po ── Legislators for Allocating Resources by Risks (available in Chinese only) -- Read
2000-01-07 Sing Tao News ── Chan Man Fong
1999-11-05 Apple Daily, Community section, Page F7, “Disabled Teenage Girl Dreams of Becoming A Writer” ── Chan Man Fong
1999-10-21 Apple Daily, Community section, Page F5 ── MPS Mutual Aid Group First Gathering
2000-01-03 Oriental Daily ── Chan Man Fong
2000-01-03 Apple Daily ── Chan Man Fong
1999-12-26 Apple Daily, Local News, Page A4, “I Give So Much that I Won’t Bend to Sickness’ Chan Man Fong Draws Out Her Rainbow of Life” ── Chan Man Fong
1999-10-07 Apple Daily, Local News, Page A3, ”MPS Patient Chan Man Fong Grateful for Praises” ── Chan Man Fong
1999-07-17 Apple Daily, Community section ── Wong Wing Kan, Eric Ma
1999-06-29 Apple Daily, Community section, Page D7 ── Wong Wing Kan
1998-04-28 Ming Pao News, Supplement, Page D2
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