Other Resources

For information about the different types of MPS and other rare genetic diseases, please click here.

What Is Orphan Drug?
http://en.wikipedia.org/wiki/Orphan_drug

What Is Orphan Disease?
http://en.wikipedia.org/wiki/Orphan_disease

China Genetics Enquiry Net 
http://www.gcnet.org.cn (Available in Chinese only)

China Genetics Enquiry Net – about MPS
http://www.gcnet.org.cn/essays/MPS.html  (Available in Chinese only)

Website on MPS I
www.MPSIdisease.com

Website on therapy for MPS I (BioMarin Pharmaceuticals & Genzyme)
www.aldurazyme.com

Website on MPS II (Shire)
http://www.hunterpatients.com

Website on therapy for MPS II (Shire)
http://www.elaprase.com

Website on MPS VI (BioMarin Pharmaceuticals)
http://www.maroteaux-lamy.com

http://www.maroteaux-lamy.com/Chinese/Patient/AboutMPS.aspx (Simplified Chinese version)

Website on therapy for MPS VI (BioMarin Pharmaceuticals)
http://www.naglazyme.com

Website on Pompe Disease (Genzyme)
http://www.pompe.com

Buddies Scheme
http://www.hk-mps.com/buddies/

Nian Duo Tang
http://www.nianduotang.com

We hope you are able to find valuable information using the links above. We offer these links for more resources about MPS and other rare genetic diseases. Inclusion in this list does not constitute any real or implied endorsement of their content.

Updated: March 14, 2010

<< Previous: Our Difficulties