2010-6-23 to 2010-6-27
International MPS Meeting - Adelaide Australia

2010-5-15
International MPS Day

2010-2-27 to 2010-2-28
Charity HKMPS Welcomes All in Hong Kong to Play at the First-ever "Songs of Rare Disease Families"

Details

2010-2-28
World Rare Disease Day

2009-12-26
Christmas Party

2009-10-26
Chong Yeung Festival Day Trip

26 October 2009 (Monday) is a public holiday. All members and consultants of HKMPS are invited to join this day trip to the Inspiration Lake Recreation Centre, which is in Penny's Bay, Lantau Island, next to Disneyland.

2009-05-12 to 2009-05-14
2009 Asia-Pacific MPS Conference

Our Right To Treatment  

We hosted a conference in May, with invitations to sister organizations in the Asia Pacific region to share experience on their process about advocating for medical treatment for their rare genetic diseases. We also invited local patient groups to attend.

Details
Joint Declaration
Photo Gallery

2009-04-13
Scouts Day Camp

13 April 2009 (Monday) is Easter holiday. We will go to Tai Tam Scouts Centre for a day of experience as boy and girl scouts. Led by the Hong Kong Island Regional Scouting Unit, we will have the opportunity to lie down in camps, use branches to roast BBQ pork and chicken wings, as well as to visit the Tai Tam Reservoir and pretend to be a movie star (since a lot of them shoot their movie scenes there).

2009-03-08 (Sunday)
Buddies Scheme Kick-off Ceremony

The Kick-off Ceremony at 2pm on Sunday 8 March 2009 (Sunday) at Citywalk in Tsuen Wan marks the official launch of our Buddies Scheme.

The Buddies Scheme is the first program ever in Hong Kong where you can pair-up one-on-one with patients with rare genetic diseases.  The scheme aims to connect MPS patients and the public at large as buddies, gain financial support from the community to cover over the million-dollar medication cost per patient each year, and raise awareness to rare genetic diseases as well as the needs of patients who live with such diseases.  It is co-organized by our group and final year students majoring in English for Professional Communication at the City University of Hong Kong.

Everyone is welcome to join the Buddies Scheme and be buddies of patients with rare genetic diseases.

2009-03-06 to 2009-03-15
Photo Exhibition --- “I’m not a Diving Bell, not a Butterfly. I’m your world”

Some of our MPS patients and families have previously completed a photography class. This exhibition showcases their photos about living with rare genetic diseases.

Details
Photo Gallery